Poster Abstracts and Reference Lists
#P13-020: Changing Individual and Familial Goals over the Course of Alzheimer’s Disease
Every three seconds‚ someone in the world will develop dementia (ADI‚ 2018). This pervasive disease impacts not only a vast number of persons‚ but also their families. As families navigate the caregiving process‚ various relational goals become salient. Individual task‚ identity‚ family relational‚ and instrumental familial goals are complex‚ interwoven‚ and often competing (Caughlin‚ 2010). This research proposal design proposes a qualitative approach to investigating how family and individual goals change over time‚ and how these changes impact family relationships. Multiple goals theory of relationships (Caughlin‚ 2010) will serve as the theoretical framework. Instrumental‚ relational‚ and identity goals will be examined for persons and families at the early stage of Alzheimer’s or dementia diagnosis‚ as well as families experiencing the middle and late stages of the disease. Both individual perspectives and family group discourse will be proposed in in–depth family group and individual interviews. Potential practical‚ theoretical‚ and methodological implications are discussed. Findings could help inform future research designs‚ such as development of an online questionnaire in hopes to solicit perspectives from a sample of global Alzheimer’s family caregivers at each stage of the disease.
Alzheimer’s Association. (2017). 2017 Alzheimer’s disease facts and figures. Retrieved from
Alzheimer's Disease International. (2018). Dementia statistics. Retrieved from
Berger C. R., Palomares N. A. (2011). Knowledge structures and social interaction. In M. L. Knapp & J. A. Daly (Eds.), The Sage handbook of interpersonal communication (4th ed., pp. 169-200). Thousand Oaks, CA: Sage.
Caughlin, J. P. (2010). A multiple goals theory of personal relationships: Conceptual integration and program overview. Journal of Social and Personal Relationships, 27, 824-848.
Family Caregiver Alliance. (2017). Alzheimer’s disease and caregiving. Retrieved from
Dillard, J. P., Segrin, C., & Harden, J. M. (1989). Primary and secondary goals in the production of interpersonal influence messages. Communication Monographs, 56, 19-38.
National Alliance for Caregiving. (2017). Dementia caregiving in the U.S. Retrieved from
National Institutes of Health. (2017). Research on informal and formal caregiving for Alzheimer's disease. Retrieved from
O’Keefe, B. J. (1988). The logic of message design: Individual differences in reasoning about communication. Communication Monographs, 55, 80-103.
Villagran, M., Goldsmith, J., Wittenberg-Lyles, E., & Baldwin, P. (2010). Creating COMFORT: A communication-based model for breaking bad news. Communication Education, 59(3), 220-234. doi:10.1080/03634521003624031
#P14-001: The Legacy of Narrative Paradigm to Care for Persons Living with Dementia and their Families
Narrative paradigm (Fisher, 1984) posits that narrative is at the core of humanity. We share our lived experiences through stories and identify with the experiences of others to shape and create relationship and contextualize reality. This critical, rhetorical reflection examines progress and potential of narrative at the intersection of health and family communication. Expanding beyond the fidelity and probability tenets of Fisher’s paradigm, a new model could first envisage supplemental narrative concepts. Narrative has developed in recent years in communication scholarship and the is used across the contexts of interpersonal, health, and family communication scholarship. Future directions for narrative research include potential practical, theoretical, and heuristic implications.
Alemán, M. W., & Helfrich, K. W. (2010). Inheriting the narratives of dementia: A collaborative tale of a daughter and mother. Journal of Family Communication, 10, 7-23. doi:10.1080/15267430903385784
Ballard, R. L., & Ballard, S. J. (2011). From narrative inheritance to narrative momentum: Past, present, and future stories in an international adoptive family. Journal of Family Communication, 11, 69-84. doi:10.1080/15267431.2011.554618
Fisher, W. R. (1984). Narration as a human communication paradigm: The case of public moral argument. Communication Monographs, 51, 1-22. doi:10.1080/03637758409390180
Goodall, H. (2006). Why we must win the war on terror. Qualitative Inquiry, 12(1), 30-59.
Kalitzkus, V., & Matthiessen, P. F. (2009). Narrative-based medicine: Potential, pitfalls, and practice. The Permanente Journal, 13, 80–86.
Langellier, K. M. & Peterson, E. E. (2004). Storytelling in daily life: Performing narrative. Philadelphia, PA: Temple University Press.
Williams, G. (1984). The genesis of chronic illness: narrative re‐construction. Sociology of Health & Illness, 6(2), 175-200.
#P03-007: Family and Individual Pathways of Alzheimer's Disease
Social experiences and support networks at various (sometimes pivotal transition) points in the life course can have significant impacts to health later in life and even through linkages to other family members (i.e., spouse, parents, children, etc.). Social ties can influence the trajectories of individual health outcomes such as Alzheimer’s disease diagnoses. Additionally, social networks, ties, and support can impact family caregiver’s mental and physical health.
This research design proposes a gendered view of life course pathways to Alzheimer’s disease diagnosis as well as the pathways to filial caregiving and the impacts that this stress can have on individual adult daughters’ health and personal relational (e.g., marital, life partner, close relational other) satisfaction. The interdependent nature of relationship trajectories, linked lives, and their impact could be examined with a view of intersecting pathways across the context of life-long journey.
Bengtson, V. L., & Allen, K. R. (1993). Life course perspective applied to families over time. Sourcebook of Family Theories and Methods: A Contextual Approach, 19, 469-499.
Dupuy, H. J., McDowell, I., & Newell, C. (1977). The general well-being schedule. In I. McDowell & C. Newell (Eds.), Measuring health: a guide to rating scales and questionnaire (2nd ed., pp. 206-213). USA: Oxford University Press.
Elder, G. H. (1995). The life course paradigm: Social change and individual development. In P. Moen, G. H. Elder Jr., & K. Lüscher (Eds.), Examining lives in context: Perspectives on the ecology of human development. Essays in honor of Urie Bronfenbrenner (pp. 101-139). Washington, DC: American Psychological Association Press.
Elder, G. H. (1998). The life course as development theory. Child Development, 69, 1-12.
Funk, J. L. & Rogge, R. D. (2007). Testing the ruler with item response theory: Increasing precision of measurement for relationship satisfaction with the couples satisfaction index. Journal of Family Psychology, 21, 572-583.
Hareven, T. K. (1982). Family time and industrial time: The relationship between the family and work in a New England industrial community. New York: Cambridge University Press.
McCubbin, H. I., & Patterson, J. M. (1983). The family stress process: The double ABCX model of adjustment and adaptation. Marriage & Family Review, 6(1-2), 7-37.
Olson, D. (2011). FACES IV and the circumplex model: Validation study. Journal of Marital and Family Therapy, 37(1), 64-80.
Sarason, I. G., Sarason, B. R., Shearin, E. N., & Pierce, G. R. (1987). A brief measure of social support: Practical and theoretical implications. Journal of Social and Personal Relationships, 4(4), 497-510.
Skaff, M. M., & Pearlin, L. I. (1992). Role engulfment and the loss of self. The Gerontologist, 32, 656–664.
Whang, W. (2013) Medical outcomes study. In M. D. Gellman & J. R. Turner (Eds). Encyclopedia of Behavioral Medicine. New York, NY: Springer